{"id":3687,"date":"2018-09-13T15:51:11","date_gmt":"2018-09-13T13:51:11","guid":{"rendered":"https:\/\/berrygoodvierzon.fr?p=3687"},"modified":"2018-09-13T15:51:11","modified_gmt":"2018-09-13T13:51:11","slug":"razorbikes-salbris","status":"publish","type":"post","link":"https:\/\/berrygoodnews.fr\/index.php\/2018\/09\/13\/razorbikes-salbris\/","title":{"rendered":"RAZORBIKES, Moto Club de Salbris en action: les Virades de l’espoir."},"content":{"rendered":"

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Moto Club de Salbris, RAZORBIKES: les prochains \u00e9v\u00e9nements!<\/strong><\/h2>\n
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Les Virades de l’espoir<\/strong><\/h2>\n
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Alors concernant nos activit\u00e9s \u00e0 venir, en ce qui nous concerne:<\/strong><\/div>\n
Moto Club 29 Septembre\u00a0<\/b>Salle Polyvalente de SALBRIS \u00e0 18h: Remise des Lots de notre tombola et du ch\u00e8que \u00e0 l’Association AMMI(b\u00e9n\u00e9fices li\u00e9s \u00e0 la tombola)<\/div>\n
30 Septembre<\/b>\u00a0Encadrement des Virades de l’Espoir \u00e0 la Fert\u00e9 Imbault organis\u00e9es par Andr\u00e9 GUYOT avec une balade de 120 Kms(affiche jointe).<\/div>\n
27 Octobre\u00a0<\/b>Participation \u00e0 la Route des Jouets au Poinconnet(36).<\/div>\n
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Moto Club de Salbris
\n06-30-72-82-44
\nrazorbikes@orange.fr<\/a><\/p>\n<\/div>\n

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SOURCE de L’ARTICLE SUR LA MUCOVISCIDOSE<\/strong><\/a><\/h3>\n
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La\u00a0mucoviscidose<\/strong>\u00a0(pour \u00ab\u00a0maladie des mucus visqueux\u00a0\u00bb en fran\u00e7ais)5<\/a><\/sup>\u00a0ou\u00a0fibrose kystique<\/b>\u00a0(en\u00a0anglais<\/a>\u00a0:\u00a0cystic fibrosis<\/i><\/span>, sous-entendu \u00ab\u00a0du pancr\u00e9as\u00a0\u00bb)6<\/a><\/sup>\u00a0est une\u00a0maladie g\u00e9n\u00e9tique<\/a>, affectant les\u00a0\u00e9pith\u00e9liums glandulaires<\/a>\u00a0de nombreux organes. C’est la maladie g\u00e9n\u00e9tique\u00a0l\u00e9tale<\/a><\/span>\u00a0\u00e0\u00a0transmission autosomique r\u00e9cessive<\/a>\u00a0la plus fr\u00e9quente dans les populations de type\u00a0europo\u00efde<\/a>, alors qu’elle est tr\u00e8s rare dans les populations africaines et asiatiques. Elle est li\u00e9e \u00e0 des\u00a0mutations<\/a>\u00a0du\u00a0g\u00e8ne CFTR<\/a>\u00a0sur le\u00a0chromosome 7<\/a>, entra\u00eenant une alt\u00e9ration de la\u00a0prot\u00e9ine<\/a>\u00a0CFTR (sigle pour\u00a0cystic fibrosis transmembrane conductance regulator<\/span><\/i>). Cette prot\u00e9ine est un\u00a0canal ionique<\/a>\u00a0perm\u00e9able au\u00a0chlore<\/a>, au\u00a0thiocyanate<\/a>7<\/a><\/sup>\u00a0dont la fonction est de r\u00e9guler le transport du chlore \u00e0 travers les\u00a0membranes cellulaires<\/a>. Son dysfonctionnement provoque une augmentation de la viscosit\u00e9 du\u00a0mucus<\/a>\u00a0et son accumulation dans les\u00a0voies respiratoires<\/a>\u00a0et\u00a0digestives<\/a>. La maladie touche de nombreux\u00a0organes<\/a>\u00a0mais les\u00a0atteintes respiratoires<\/a>\u00a0sont pr\u00e9dominantes et repr\u00e9sentent l’essentiel de la\u00a0morbidit\u00e9<\/a>. La forme clinique la plus fr\u00e9quente associe troubles respiratoires, troubles digestifs et\u00a0troubles de la croissance staturopond\u00e9rale<\/a>. D’\u00e9volution chronique et progressive, la maladie s’exprime souvent t\u00f4t d\u00e8s la petite enfance m\u00eame s’il existe des formes frustes de diagnostic tardif.<\/h3>\n

Le diagnostic biologique repose sur le test de la sueur confirm\u00e9 par une\u00a0identification des mutations<\/a>\u00a0g\u00e9n\u00e9tiques. Le\u00a0d\u00e9pistage n\u00e9onatal<\/a>, g\u00e9n\u00e9ralis\u00e9 en France depuis 2002 permet un diagnostic et une prise en charge pr\u00e9coce alors que le\u00a0conseil g\u00e9n\u00e9tique<\/a>\u00a0permet \u00e0 un couple h\u00e9t\u00e9rozygote connu de ne pas avoir un autre enfant malade. Il n’y a pas de traitement curatif mais les progr\u00e8s de la prise en charge ont permis d’am\u00e9liorer la\u00a0qualit\u00e9<\/a>\u00a0et l’esp\u00e9rance de vie<\/a>\u00a0des patients\u00a0; ainsi en\u00a0France<\/a>, l’esp\u00e9rance de vie \u00e0 la naissance8<\/a><\/sup>\u00a0est pass\u00e9e de sept ans en 1965 \u00e0 47 ans en 20059<\/a><\/sup>, et d\u00e9passe 50 ans depuis 201410<\/a><\/sup>.<\/p>\n

Connue depuis le\u00a0Moyen \u00c2ge<\/a>, la maladie est d\u00e9crite scientifiquement par le p\u00e9diatre suisse\u00a0Guido Fanconi<\/a>\u00a0en\u00a01936<\/a>11<\/a><\/sup>. Elle est identifi\u00e9e deux ans plus tard par\u00a0Dorothy Hansine Andersen<\/a>\u00a0comme une\u00a0entit\u00e9 pathologique<\/a>\u00a0atteignant le\u00a0pancr\u00e9as<\/a>\u00a0d’o\u00f9 son nom historique de\u00a0fibrose kystique du pancr\u00e9as<\/i>. Elle conserve ce nom en\u00a0anglais<\/a>\u00a0:\u00a0cystic fibrosis<\/i><\/span><\/p>\n<\/div>\n

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Moto Club de Salbris, RAZORBIKES: les prochains \u00e9v\u00e9nements! Les Virades de l’espoir Alors concernant nos activit\u00e9s \u00e0 venir, en ce qui nous concerne: 29 Septembre\u00a0Salle Polyvalente de SALBRIS \u00e0 18h: Remise des Lots de notre tombola et du ch\u00e8que \u00e0 l’Association AMMI(b\u00e9n\u00e9fices li\u00e9s \u00e0 la tombola) 30 Septembre\u00a0Encadrement des Virades de l’Espoir \u00e0 la Fert\u00e9 …<\/p>\n","protected":false},"author":2,"featured_media":3694,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":true,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[34,14],"tags":[28,29,17,18,19,48,20,21,22,23,32,33,688,26,55,27,65,42,80,689,44],"post_format":[],"flags":[],"class_list":["post-3687","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-region-centre","category-vierzon-et-ses-environs","tag-article-berry-republicain","tag-berry","tag-berry-good-vierzon","tag-berry-republicain","tag-berrygoodvierzon-fr","tag-beygoogviezon-fr","tag-bgv","tag-centre","tag-changer","tag-cher","tag-httpswww-open-mag-net","tag-je-vierzon-positive","tag-razorbikes","tag-region-centre","tag-sologne","tag-vierzon","tag-vierzonitude","tag-vierzonnais","tag-vignoux-sur-barangeon","tag-virades-de-lespoir","tag-youtube"],"yoast_head":"\nRAZORBIKES, Moto Club de Salbris en action: les Virades de l'espoir. - Berry Good News<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/berrygoodnews.fr\/index.php\/2018\/09\/13\/razorbikes-salbris\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"RAZORBIKES, Moto Club de Salbris en action: les Virades de l'espoir. - Berry Good News\" \/>\n<meta property=\"og:description\" content=\"Moto Club de Salbris, RAZORBIKES: les prochains \u00e9v\u00e9nements! 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